Exodus 1:8-2:10
I came out of the closet during the worst years of the AIDS crisis. Folks were dying, including people I knew, co-workers and members of my social circle. Some courageously went out in public with Kaposi’s sarcoma, an opportunistic form of cancer, visible on their bodies like a latter day Scarlet Letter, while others hid from public view. People died alone, or without the comfort of longtime companions, as families and hospitals refused to acknowledge same-sex relationships.
It is no surprise, then, that the late playwright Larry Kramer led others in founding ACT UP, the AIDS Coalition to Unleash Power. Socially-acceptable hemophiliacs like Ryan White aside, AIDS was most common among gay men, and gay men did not fit social constructs of gender expression and affectional orientation. Many believed the disease was divine judgment.
ACT UP followed in a long tradition of direct and disruptive action in pursuit of justice, an approach used by Suffragettes and activists in the Civil Rights movement, and still used by Black Lives Matter, Extinction Rebellion, and the particularly controversial and diverse Stop Oils collectives.
Legal equality for the LGBTQI+ community is at-risk these days, but at least for now, legal equality is the law of the land, even in neo-fascist Florida, the state of hate, even in liberal California, where small business owner Lauri Carleton was gunned down just nine days ago for displaying a Pride flag.
There is still no cure for HIV/AIDS, though retroviral drugs have slowed disease progression and extended lives. Among those are treatments developed by the pharmaceutical company Gilead Sciences, a company named after a play that is itself named after a passage in the Book of the Prophet Jeremiah, when the cranky man of God asks if there is no balm in Gilead. The balm in Gilead was a rare perfume used for medicinal purposes and derived from the terebinth tree. The prophet essentially asks “Is there no medicine for this?”
Gilead’s HIV treatments, the medicine for this, use a drug they developed called tenofovir. Like all of the antiretroviral therapies developed to manage HIV/AIDS, tenofovir came with awful side effects, was extremely expensive, and incredibly profitable for the company.
According to New York Times reporting on a current lawsuit, as early as 2004, Gilead had created a version of tenofovir that was safer for patients. They shelved that new treatment for over a decade. The existing version of tenofovir was under patent until 2017. Gilead continued to sell the more dangerous form of the drug for another decade, only rolling out the new version in 2015, allowing them to extend the life of the patent. An extended patent meant no competition, and a continued monopoly meant more profit.
Gilead Sciences knew the newer form of tenofovir was less toxic to patients, doing less damage to kidney’s and bones. They didn’t care. Corporations, originally intended as a structure to allow people to partner in business creation, now function as a facility for amoral and often immoral conduct.
Continue reading “27 August 2023: No Balm From Gilead”